Sunday, September 20, 2015

Get Your Leukodystrophy Awareness Flag

*please note: The flags were only available during our Awareness campaign in September.

Order your fabulous Leukodystrophy Awareness flag with a gift of $100 or more to The Stennis Foundation! The flags are huge (standard flag size of 3'x 5')! They are white, with the Navy Blue Awareness Ribbon, and the words "LEUKODYSTROPHY AWARENESS." The flags have two grommets on the edge to attach to your flagpole. Click the button to donate, and order your flags!

Saturday, August 02, 2014

Donate to Stennis Foundation by shopping Amazon

You can donate to Stennis Foundation every time you make a purchase on Amazon. It's true! Just click this link, and you will be registered to support Stennis Foundation with your purchases. It's that easy! Click on the picture, and you will be taken to the site.

Friday, September 10, 2010

Leukodystrophies Awareness Ribbon Magnets

These fabulous magnets for Leukodystrophies Awareness are on their way! We should have them in within 2 weeks! You can get them for $1.25 each, plus postage. Please let us know how many you would like. When they arrive, we will figure postage and let you know.

Thanks for your support! Because of your generosity, we are "One Step Closer to a Cure!"

Sunday, August 08, 2010

"It's the L.A.W.™"
Leukodystrophies Awareness Month & World Leukodystrophies Day

September is Leukodystrophies Awareness Month. Wear navy blue all month long. Tie navy blue ribbons on your car antennas; tie them on your trees. Encourage all your friends and family members to do the same! People will notice, and when they ask about it, we can tell them all about Leukodystrophies!

Saturday, September 25, 2010 -- the last Saturday in September -- is World Leukodystrophies Day. The Stennis Foundation is sponsoring the "It's the L.A.W.™" Campaign -- the Leukodystrophies Awareness Walk. The L.A.W. is 10 miles in length, and it's wherever you are. Map your course, and take off walking. Pledge sheets are available for download here. Even if you do not walk that day, please consider obtaining sponsors for this event!

We also have these pin-on badges for only $2 each (includes shipping in the US. Outside the US, please contact us for shipping information). You can download an order form here and send in with a check, or you can use the "Donate" link, and include your information in the space provided.

Think of all the awareness we will raise!

Friday, July 30, 2010

We have shirts left!

We have shirts from our Walks! Shirts are $12 each, and includes shipping. US only. We do not have any 2X left. We have S, M, L, XL in adults, and S, M, L in childrens. To get shirts, just use the Donate link at, and when you get to the PayPal page, you can enter any instructions. You can also order by sending a check to The Stennis Foundation, PO Box 30065, Amarillo, TX 79120.

Thursday, July 15, 2010

Sign up today!

If you have not yet registered for the "One Step Closer" Walk for Leukodystrophy in Allen, TX, please take a moment and do so today!! This will be a great event. We will also have a ticket auction, and a bone marrow drive!! Come be a part!! Sign up today at

Also, the Southfork Hotel is our hotel sponsor for the Walk! If you are coming from out of town, please do not reserve your room online, but call the Southfork Hotel directly, 866-665-2680 or 972-578-8555, and tell them you will be there for the Walk.

Please pass this information along to everyone you know! The success of the Walk depends on everyone working together!!

Thursday, June 17, 2010

To our Texas Friends

The next "One Step Closer" Walk for Leukodystrophy will be Saturday, July 24, 2010 in Allen, TX. Allen is in the North Dallas area, and we would love for all of our Texas friends to come help us honor Nathan Fleming, Zach Harrison, Greyson Morris, Maddy Schmiedel, Jansen Scott, Deborah Lloyd, Christopher Benson, Cassidy Pearish, Ryan Scott, Chris Michael, Kaleb Pitchford, Nathan Kuai, and others who are or were affected by a Leukodystrophy.

Please plan a weekend trip to Dallas the weekend of July 24, and come walk with us on Saturday morning! The walk will be at Celebration Park (Angel Pkwy & Malone) in Allen. We will also have a "ticket auction" (you buy tickets and use them to bid on items), and a bone marrow drive (no one is giving bone marrow -- it's a recruitment for people to join the national bone marrow registry. Four cheek swabs is all it takes!).

Late registration and sign in begins at 9:00 a.m., and the walk begins at 10:00. Registration is $20 and includes a t-shirt. Online registration is open now at Sign up today, and help us bring down these horrible diseases!

If you are not able to attend, please consider a donation to The Stennis Foundation to fund research and recruits to the bone marrow registry. You can give, or sponsor someone in this walk, online, at (click on Donate).

Checks can be mailed to:
The Stennis Foundation
PO Box 30065
Amarillo, TX 79120

Thanks for your time and support!!