Mark your calendars! The Stennis Foundation is hosting a "One Step Closer" Walk for Leukodystrophy in Old Bridge, NJ on Saturday, May 17, 2008. It will be held at Lombardi Field at the High School in Old Bridge. Registration and sign in will begin at 12:00, and the Walk begins at 1:00. The length of the Walk will be four miles.
This walk is being put together by Susannah "Sissy" Rutan, who is honoring Eric Brown, and all who are affected by a Leukodystrophy. Our Jersey fam includes Reese, Warren, Anthony, Matthew, Laura, Chris, Steve, Dawn, Nicky, and Peter. And Brielle, KaliAnn, and Tyler, who were thought to have MLD, but turned out to be Batten's...another lysosomal storage disorder.
Please mark your calendars, get people to sponsor you, and let's make a serious dent in getting rid of the Leukodystrophies forever. We are "One Step Closer to a Cure!"