Thursday, February 28, 2008

Cheezy Riders Invitational now posted on YouTube!

The fabulous Cheezy Riders Invitational has now been posted! This was the first event of its kind for The Stennis Foundation, and it was amazing! The pics in this video are just a few of many. We are so grateful to the Cheezy Riders for this event! Please check out the video:

Thank you for your support of The Stennis Foundation!

Monday, February 18, 2008

"Recycle for Research"

The Stennis Foundation has launched the "Recycle for Research" Campaign, and we need your help!

Please save the tabs from soda cans, or from pull-tab canned foods, and send them to:
The Stennis Foundation
PO Box 30065
Amarillo, TX 79120

This will help us raise funds for desperately needed research for the Leukodystrophies. Please help us help others, through the work of The Stennis Foundation!

"One Step Closer" Walk for Leukodystrophy in Old Bridge, NJ!

Mark your calendars! The Stennis Foundation is hosting a "One Step Closer" Walk for Leukodystrophy in Old Bridge, NJ on Saturday, May 17, 2008. It will be held at Lombardi Field at the High School in Old Bridge. Registration and sign in will begin at 12:00, and the Walk begins at 1:00. The length of the Walk will be four miles.

This walk is being put together by Susannah "Sissy" Rutan, who is honoring Eric Brown, and all who are affected by a Leukodystrophy. Our Jersey fam includes Reese, Warren, Anthony, Matthew, Laura, Chris, Steve, Dawn, Nicky, and Peter. And Brielle, KaliAnn, and Tyler, who were thought to have MLD, but turned out to be Batten's...another lysosomal storage disorder.

Please mark your calendars, get people to sponsor you, and let's make a serious dent in getting rid of the Leukodystrophies forever. We are "One Step Closer to a Cure!"

Saturday, February 16, 2008

A New - SHORT - Video on YouTube

I have posted a SHORT video on YouTube. This one is of the "One Step Closer" Walk for Leukodystrophy we held in Brighton, Massachusetts, honoring Athena Reitano and Raghavan Sundar. There aren't many pics, because my camera wasn't working right. But we had a great time, and funds were raised for research! Please view this video: This video will also be posted on our MySpace.

Wednesday, February 13, 2008

ANOTHER New Video on YouTube!

I have posted another video on YouTube. This one is of the "One Step Closer" Walk for Leukodystrophy we held in Allen, Texas. It was an amazing event, honoring Nathan Fleming and Ross and Trevor Joiner. We had close to 300 walkers that day. It was awesome! Rhonda, Nathan's mom, and her friends did an awesome job putting it all together! Please view this video: I will be posting it on our MySpace, too. If you would like to post these videos on your page, the code is available on YouTube.

Thank you for supporting the work of The Stennis Foundation!

Tuesday, February 12, 2008

New Video on YouTube

If you have ever wondered about the work of The Stennis Foundation, this video is a must see:

The Stennis Foundation is committed to raising awareness of the Leukodystrophies, and to raising funds for Leukodystrophies research. The fundraisers are "for the families" -- to bring Leukodystrophies families together with other Leukodystrophies families. The funds raised are used to fund desperately needed research. There are some interesting things happening in the world of research, in Mexico. Although these latest developments are not "FDA approved" they have given hope to many MLD families.

Contributions to The Stennis Foundation are tax-deductible under IRS section 501(c)(3). Please visit, or for more information.